12:02 am - Mon, Sep 1, 2014
2 notes

Will we?

People I see, especially my own age, are concerned with human need, but the reaction dissipates as soon as we stop feeling the intensity of fresh suffering.  Our compassion works like social media on a good day, sparking from platform to platform, covering the world and quickly collapsing.  Is there so much to do that we freeze and run instead of picking one good thing, or a few, and learning, specializing, showing up, building relationships, organizing, digging in?  In the long run, which will we do?  I can see this going either way.   

12:15 am - Sun, Aug 31, 2014
2,609 notes

Reminder to all the disabled kids going back to school ~


Your best is always, always enough — even if what “your best” is changes daily due to energy/spoon loss, etc!

Your health is important, please take care of yourselves. ❤

(via wheeliewifee)

11:22 pm - Sat, Aug 30, 2014
2 notes

An Activist’s Journey Began with this Blog…


This is my 1,000th post here, and nearly a year of blogging here.

I have been refraining from posting anything lately until I found the energy to write this blog post. I have been very tired recently, from an iron deficiency that the doctor just noticed. Supplements are great, by the way. I feel significantly less dead already. I have been archiving posts to reblog once I make this post, even though this blog has been silent for several days.

This blog will be one year old on some day in September (I am not sure when I made it). I had used Tumblr before on a different account, just kind of reblogging ~all the things~. I have one of those now, separate from this blog. Some time back I made the decision to make this blog “serious” - a.k.a., a primarily advocacy and activism blog.

Sometimes I do wonder if my decision to make the blog so serious and impersonal has affected people’s ability to relate to me, the blogger. I just have never found it beneficial to share secrets and feelings and rant and vent when my name is on the Tumblr (I can be private except with friends) and when people may point fingers and say “that disabled person is so [insert negative emotion here]!” and then later use it as an argument against me.

Sometimes I grow concerned that I will end up locked into this blog and unable to take breaks, though I’ve improved a lot and I don’t want to fall into that. As much as I can do online, I also have an ASAN chapter to run and things to work on locally. I also have other activities that bring me happiness, like writing, drawing and reading, and being a historian.

I never thought I’d be an advocate and activist. I was trying to just hang in there, along for the ride, not realizing I could change much. In fact, that had been my life – hanging in for the ride, not asserting myself as a person worthy of my own voice. I was opinionated, but never felt validated by myself or others.

I made a friend, Larkin, here at college (she graduated last spring) who is involved with neurodiversity and I was curious, so I went with her to a talk by Ari Ne’eman at Emory University (video of that transcript here) a month or so after the creation of the blog.

I was smacked in the face by the realization that autistic activism exists! Also, all the really terrible things that happen to disabled people, whether more subtle ableism to downright violence and brutality. There are many things that happen to us and I hadn’t had a clue and I also felt really… not smart for not automatically knowing. I honestly lived in a bubble before then.

To be fair, I didn’t know I was autistic until I was 14 and I was a middle-class kid who had been sheltered, even though no one really knew about me being autistic until then. The diagnosis rang off my ears and I didn’t think about it much because everyone insisted I was only different, not disabled.

So I started learning, reading blogs and writing my own posts and reading books and articles. There are several posts I am proud of, and these are filed under Pagination Essay Posts. The first #actuallyautistic post I made was September 27, 2013, (at link: medical violence, abuse, ableism, non-consensual surgery) Silenced Without Consent, on the surgery of an autistic boy, Kade, who had vocal stims and tics that involved screaming and people were inconvenienced.

The most recent was July 27, 2014, (at link: child abuse, ableism, abuse against autistic people, murder mention) Complicit Narratives, on the New York Times article that essentially sympathized with the abusers of autistic people with the familiar “they must have been so difficult” narrative and calling it a “least bad choice.”

I don’t just use the #actuallyautistic tag, but numerous tags associated with social justice. I don’t feel qualified to speak on prejudices I do not experience and oppressed identities I do not share, so I tend to stick to reblogging those. My most common posts are on autism, ableism, and disability.

My advocacy career effectively began in the fall of 2013. By February, I was accepted into ASAN’s Autism Campus Inclusion (well, I applied in February, I don’t remember the date of acceptance – March I think). How on earth did I get there after barely six months? Some people had been at it for years. Nonetheless, I made it and met some awesome people there. We flapped and stimmed and made special interest references every three seconds.

Now it’s six months after that. I held my first ASAN Atlanta chapter interest meeting on May 30, 2014. Despite me almost falling out of the booth from a cold, a cough, and a double ear infection, we made it through the meeting and will be coming up on our fourth meeting on September 2.

For those of who you have been with me for the whole ride, I thank you, for those who came around later or just now, I still thank you. I hold this movement close. When I think of all the injustice we have to battle against, I remember our culture and our history and the way my friends write about culture and the way I have an autistic poetry blog for autistic people who want to submit poetry and a blog on eugenic history.

I have too many blogs, but I always remain with this as my main blog, the blog that started it all.

Being mentioned in this is an honor.

8:34 pm - Fri, Aug 29, 2014
375 notes
  • allistic parents who have autistic children: i'm not going to tell my child that they're autistic because maybe then they'll be able to function normally.
  • those autistic children: i feel like a freak because i'm not like everyone else. i think there's something wrong with me but no one will tell me what.
8:33 am
67 notes


Sometimes, I wonder if other autistic people share my experiences. And then I keep my questions to myself. Because that’s how things are. Because I think my questions are weird. Or pointless. Whatever. There’s almost always something.

So, yeah. I created a blog just so I could anonymously ask all…

10:43 pm - Wed, Aug 27, 2014
7 notes
10:38 pm
5 notes


So much technological, scientific, and mathematical genius in my family, and it all skipped autistic me. I’m extremely right-brained.

The joke is that family genes split from expected packages and told each other “Go on ahead! I’ll catch up!”

That happened in my family, too.  My allistic paternal grandfather literally did rocket science at one point.  I wish I could do math.  Numbers are not my friends.

6:36 pm - Sun, Aug 24, 2014
11 notes

Would you like to see a documentary that features, at its heart, autistic people sharing their opinions on what our future should be go on tour across the U.S.?  I hate to turn this into spam, but even a signal boost might help this catch the eye of someone who can support it materially.

(via iamthethunder)

2:40 pm
1 note
10:46 am - Sat, Aug 23, 2014
29 notes


A couple researchers who have studied neurodiversity, including Autistic self-advocate Steven Kapp, have designed an online training on knowledge of autism. They have tried to represent up-to-date “scientific knowledge” about autism, including ideas drawn from the neurodiversity movement. It is the first training study on autism to intentionally include Autistic people, but it’s open to all adults. It allows opportunities to critique the measures and training; a major part of the study is to see which aspects of “scientific knowledge” are considered relevant or true. 

It takes about an hour and must be completed in one sitting.

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