Georgia Arc Network,
We’ve got great news!
The Arc has created the National Council of Self Advocates (NSCA) <http://www.thearc.org/page.aspx?pid=2660> to facilitate greater involvement by self-advocates in leadership roles and advocacy. We value the input that self-advocates from our chapter network can provide towards informing the work that The Arc does.
Three self-advocates who serve on The Arc’s National Board of Directors, Barbara Coppens (CT), Joe Meadours (CA), and Kurt Rutzen (MN), are already guiding the development of this Council, but they need some help to make it a truly powerful national initiative. You may have caught a glimpse of their vision and enthusiasm at The Arc’s 2011 National Convention in Denver or during a webinar they presented in early January 2012.
The next steps are selection of the Advisory Group members (guiding the direction of the Council) and recruiting members to participate in the Council.
That’s where you come in! You are receiving this email because you indicated in the Chapter Profile that your chapter “hosts, sponsors or supports a self advocacy group”. We intend for the Advisory Group to consist of one representative from each state. We want to offer you the opportunity to nominate someone from your local self advocacy group to serve in this leadership role. Please complete this online application form <http://fs16.formsite.com/u024508129ncearc/form62/index.html> by May 20th. Advisory Group members must be members of a chapter of The Arc and should commit to participating in free monthly conference calls. The Advisory Group will play a key role in developing the activities and goals of the National Council of Self Advocates (NCSA) of The Arc. They will shape the future of involvement of self-advocates at all levels of The Arc. Those interested in serving should have demonstrated leadership experience with a desire to uphold the NCSA’s Purpose Statement:
To ensure that individuals with I/DD have a clear voice in creating lives that allow them meaningful choices for a promising future. Including:
Ø Opportunities to be leaders in their communities,
Ø Sharing the values of self determination and building skills for a brighter tomorrow,
Ø Living and participating in society with the same rights and responsibilities as our neighbors,
Ø Educating the community about Intellectual and Developmental Disabilities
The National Council of Self Advocates (NCSA) Membershiprecruitment began in March during Developmental Disabilities Awareness month. Information will continue to be in Fusion (our chapter e-newsletter) and on our website about how to become a member of the National Council of Self Advocates. You‘ll receive more emails soon detailing how you can help your members join the Council. (Free membership is open only to those self advocates who are members of The Arc.) Already nearly 100 individuals have joined NCSA! Our goal is to involve 1000 self advocates from our more than 700 chapters.
If you believe you are not the right person at your chapter to be receiving this – please forward to the Executive Director. Or, feel free to contact Laurie Ertz, Director, Chapter Excellence Group at firstname.lastname@example.org or # 202-534-3708 if you have any questions.
Thank you for your commitment to the involvement of self-advocates in the future of The Arc as together we build a stronger federation and accomplish our mission. Consider nominating one (1) self-advocate from your chapter to serve on the NCSA Advisory Group. NOMINATE by May 20, 2012 <http://fs16.formsite.com/u024508129ncearc/form62/index.html>
The email I copied was to us in Georgia, but it applies to people across the country. If you are or know someone with an intellectual disability, look into it.
Find him on Facebook and Twitter. Write him letters. Call his office. Be brief, succinct, and civil. Tell him his constituents disapprove of torture. He needs a lecture.
[description: In varying tones of red on a white background, the words “I am not your playground insult.”]
Is this off-center, guys? I’m bad at judging that sorta thing.
So am I. Either way, it looks great.
Reports of such incidents should be “minuscule,” said Maureen Fitzgerald, director of disability rights at the Arc, which advocates for people with disabilities. Fitzgerald said when abuses occur, it’s usually because workers aren’t properly trained.
“They are put in situations where they’re not trained, they don’t have the support they need and things get out of control because they don’t know how to manage the kids, and they do whatever they can to keep everybody calm and safe … and that’s when people start getting hurt,” Fitzgerald said.
Fitzgerald’s organization is among several disability organizations seeking passage of a bill by Sen. Tom Harkin, D-Iowa, that would prohibit the use of seclusion and allow restraints only in emergency situations and until the danger of serious bodily injury has passed. Rep. George Miller, D-Calif., has a similar bill in the House. Legislation to address the issue sponsored by Miller passed in 2010 but failed to get out of the Senate.
TW violence, child-murder, ableism, r-
My mother was infuriated this morning when I used the word “lie.” Someone appeared to be doing just that. She said it was worse than the words I try to censor in my half-hearted attempts to make Traveling Show seem professional. She said I was making a terrible accusation and only God can be the judge. I would love to abandon that word, but too many lies threaten or misrepresent people like me.
The most famous example is below:
Wakefield lied. He apparently had financial motivation. He valued what he thought he would get more than public health. People got sick:
If the lie continues to spread, some will die.
Here is another:
Autism Speaks has finally removed it from their Youtube channel. They hid it instead of apologizing. This is their favorite lie to tell: that autism in all its forms is the worst thing that could ever happen, that any autistic person . They are rumored to have asked the mothers and children to look intentionally disheveled and to have kept those children out of their therapies for the preceding week. Unlike some of you, I will not call words violent. We need a specific term for physical aggression. However, that falsehood stuck in the popular imagination has played into violence. Violence is among its consequences. Autism Speaks perpetuates the “child rocking in a corner” stereotype to raise funds for its vision of a world without us. Some of its members no longer share that vision. We may see better from them in the future, but that is what they have done so far. They perpetuate ideas that are false and damaging to autistic people because they think the end justifies the means. A cure for their children is worth damaging as many other lives as necessary.
The consequent popular perceptions of autistic people are best illustrated by something I observe. I keep track of our dead, those that should be alive. No one seems to get life imprisonment for killing an autistic person. The penalty is five or ten years. Being actively violent somehow makes a negligent homicide charge. Life imprisonment is a civilized version of the death penalty. As applied to murder, it is the law’s way of excluding someone from society because that individual excluded someone else. What does it say about the perceived value of our lives that no one is permanently excluded from society for excluding us? It says what we saw yesterday and the day before when we got a reminder that disability plays into medical decisions.
The stigma against the autism community can be boiled down to two false perceptions:
I will stand up to every instance of false advertising, ignorance, and outright lies that uphold those ideas. They are not violent in and of themselves, but they perpetuate violence, poor educational and career prospects, abuse, and the diversion of money that could have helped us to neo-eugenic organizations. I will not give up a word and concept I use to undercut those things for anyone.
There are many issues today regarding reproducing, many I feel would be fixed with the placement of a restriction on the ability to produce offspring.
- the entire issue of abortion would be eliminated
- we would no longer have teen pregnancy
- the government’s…
Fuck you, op. Your are disgusting.
And let me guess. Only rich, able bodied, heterosexual white people would qualify.
Go study history. I started around the time I learned to talk. There are some advantages to being born at the University of Chicago even if it does make one a weirdo. American progress and expansion have a legacy of bloodshed and oppression. If you count the vast group of “Indians” as individual nations, there are hundreds of groups our country tried to use, abuse, murder, or subjugate. One of the many dark chapters of American and European history is the Eugenics Movement. Read about what happened. Come back and tell me if you still like your idea. The saying about people who forget history being doomed to repeat it is true. As someone who knows about it, I do not want to go back there.
If you really want to know what you are talking about, I have a couple of papers on that era lying around. Neither is particularly long. Both have fairly extensive bibliographies you could check you if there is a decent-sized, scholarly library in your area. Let me know if you want to see why many of the people rebloging you are unhappy.
Our school has a class specifically for kids who need special attention. You would think that they provide good care for them, but they proved that statement to be false. Whenever I pass the classroom, they’re doing nothing. When I see them in the hallways with their teacher, they’re sweeping the…
You have hit on a real problem for students with intellectual and developmental disabilities. They are often used as janitors or kept out on field trips with no educational value. Their school days are shorter. Such educational inequality is illegal, but it still happens.
I just saw this on Alisha’s blog
And I really feel empathy for this person and her brother, as they sound like wonderful people and through this I’ve sort of seen how such an accepting…
You guys seem like great siblings. To assuage your fears, putting people with intellectual and developmental disabilities in homes is getting rare. By the time they need somewhere to live, there may well be subsidized housing available. Supported employment is increasingly common. You can lobby for these things if you want. If it is happening in Georgia, it can happen anywhere.
“Being an unperson means being hated, not always in an overt emotional way. It means people want you to be a real person. Which sounds good, until you realize they don’t believe you are a real person already. And that, being erased, is the true nature of hate.”